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Terms and Conditions

Last updated: May 2026

1. About this site

The Haemophilia Rights Project (haemophiliarightsproject.org) is an independent advocacy project operated by Luke McLaughlin. By accessing or using this website, you agree to these terms.

2. Not legal or medical advice

The content on this website is for informational and advocacy purposes only. Nothing on this site constitutes legal advice, medical advice, or professional advice of any kind. You should not rely on any information on this site as a substitute for advice from a qualified legal or medical professional.

Rights frameworks, laws, and guidance vary by country and change over time. Information presented here reflects the understanding of the operator at the time of publication and may not be current or applicable in your jurisdiction.

3. No liability

To the fullest extent permitted by applicable law, the Haemophilia Rights Project and its operator accept no liability for:

  • Any loss or damage arising from reliance on the content of this site
  • The accuracy, completeness, or currency of any information on this site
  • Any decisions made on the basis of content published here
  • Content on any external websites linked to from this site

4. External links

This site contains links to external websites, including UN bodies, government sources, and third-party organisations. These links are provided for information only. The Haemophilia Rights Project does not endorse, control, or accept responsibility for the content of any linked external site.

5. Voice form submissions

Submissions made via the voice form on this site are voluntary. By submitting, you confirm that the content is your own experience and that you consent to it being stored and potentially used anonymously in HRP's advocacy work, where you have indicated consent. Your name will not be published without separate, explicit consent. Submissions may be deleted upon request sent to contact@haemophiliarightsproject.org.

6. Intellectual property

The content on this site - including text, structure, and original research - is the property of the Haemophilia Rights Project. You may share or quote content for non-commercial advocacy, educational, or journalistic purposes with attribution. You may not reproduce substantial portions of this site for commercial purposes without prior written permission.

7. Independence statement

The Haemophilia Rights Project accepts no pharmaceutical funding, commercial sponsorship, or donations. The views expressed on this site are those of the operator and are not shaped by any external funder or commercial interest.

8. Changes to these terms

These terms may be updated at any time. Continued use of the site following any update constitutes acceptance of the revised terms. The date of the most recent revision is shown at the top of this page.

9. Governing law

These terms are governed by the laws of Northern Ireland. Any disputes arising from use of this site will be subject to the exclusive jurisdiction of the courts of Northern Ireland.

10. Contact

For any queries relating to these terms, contact: contact@haemophiliarightsproject.org